Caregiver Self-Care

“If your compassion does not include yourself it is incomplete” (Jack Kornfield, 1994)

When a child is diagnosed with a life-limiting illness, all family members will very likely experience a range of changing emotions.  It is normal to feel fear, worry, irritability, and sadness.  You might also feel helpless, powerless, out of control and confused.  There is no right or wrong way to feel.  There will be bad days, and there will be good days. Everyone has a different way of coping.  People often have different feelings at different stages of the progression of an illness and at end-of-life.