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About The Difficult Decisions Booklet

This booklet was written by Paediatric Palliative Care nurses and provides information to help the decision making process that families often face as their child’s illness progresses. Prior to publishing, bereaved parents/carers also added their insights based on their memories of having to make choices and difficult decisions during their child’s illness. This was important to ensure the Booklet was relevant and reflected a true experience from a family’s perspective. 

If after reading the Booklet, you have any concerns or questions, we encourage you to talk with your Palliative Care Team.